Cystic Fibrosis Trust - Project
I was contacted by the Cystic Fibrosis (CF) Trust to join them as they interviewed parents with young children with CF.
I was fortunate enough to meet some amazing parents and brave young kids.
For more about living with Cystic Fibrosis visit their website: www.cysticfibrosis.org.uk
We are writing a piece on the experiences of people with CF that have children. For years, the focus has been on the parents of children with CF, who often refer to themselves as CF parents. But with the ever-growing survival age, more and more people with CF are having children themselves, which means that there are lots of new challenges to think about – juggling hospital admission and childcare, keeping up with physio, confronting the possibility that they might not be there to see their children growing up. In this piece we have interviewed three individuals with CF who have children